Tenez une activité de financementPour amasser des fonds pour arrêter la maladie de Crohn et la colite ulcéreuse, les individus, les groupes d'employés, les clubs philanthropiques et les entreprises à travers le Canada développent leurs propres idées pour amasser des fonds.
Vous pouvez commencer votre collecte de fonds aujourd'hui par la mise en place de votre propre page de collecte de fonds en ligne.
Contacter un membre de l'équipe de Crohn et Eolite Canada dans votre région.
Lisez à propos de la façon dont d'autres organisent des événements dans leur communauté pour recueillir des fonds pour de Crohn et la colite Canada:
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Courtesy of Sara Ross, The Packet & Times
A special kind of jewelry hangs around Briana Attwood's neck. The colourful beads strung on two necklaces represent the nine-year-old's bravery. "These are the blood-taking ones. They're brown," Attwood said, while holding a small, wooden bead. Each of Attwood's bravery beads represent a treatment she has undergone at the Hospital for Sick Children in Toronto.
"Every time she had an infusion, blood transfusion or another treatment, she got one. They just kept adding to them," said Melissa Attwood, Briana's mom. Briana was six years old when she was diagnosed with ulcerative colitis.
Briana Attwood next to her collected donations for Crohn's and Colitis Canada. The nine-year-old Orillian is battling the disease and wants to help others like her.
Colitis attacks the large intestine and causes inflammation. Briana's entire large intestine is affected. Colitis is just as common as Type 1 diabetes and epilepsy, Melissa said. "They say one in every 150 people have it. We just don't talk about it because it's a bathroom issue," Melissa said. "Nobody wants to talk about that. It's embarrassing for a lot of people."
Briana wants to talk about it. "It feels like I'm different from everyone else," she said. "Everyone else, they don't understand.” Melissa said it's "really therapeutic" for Briana to be able to talk about the disease.
Briana showed signs of colitis early. It started with sensitive skin. When she was younger, Briana insisted on wearing her clothes inside out. "She couldn't stand the seams on her clothes," Melissa said. When Briana was six, blood started appearing in her stool. Doctors believed it was chronic constipation, but Melissa didn't. She ended up being diagnosed with colitis and began working with a gastrointestinal specialist in Scarborough. The specialist could not get the colitis under control, Melissa said. Briana's disease became worse in the spring. "I was carrying her in and out of the hospital," Melissa said.
It was then the Hospital for Sick Children (SickKids) got involved. "Once SickKids got involved ... they saved her life," Melissa said. "They are just phenomenal down there. I don't know where we'd be without them." Briana stayed at SickKids for one month. "They did think at one point they would have to take the colon out," Melissa said. SickKids doctors got the colitis under control with a drug called Remicade.
There is no cure for colitis besides removing the colon and having it replaced. Every six weeks, Briana must undergo Remicade-infusion treatments. The $1,000 cost is covered by the Ontario Health Insurance Plan. "A chemical in the drug stops the bleeding," Melissa said. "It gives her some normalcy in life."
Now that Briana's colitis is under control, she wants to help other children struggling with the disease.
Briana, in Grade 3 at Harriett Todd Public School, asked her school to host a fundraiser for Crohn's and Colitis Canada. "Some kids have it worse than me," she said. "I just want to help them raise enough money."
The fundraiser held on March 6 raised just over $2000 because her classmates donated $1 to go to school in pyjamas. "Briana lived in PJ's for a month at SickKids," Melissa said. While Briana was in the hospital, Harriett Todd staff and students showed "unbelievable" support, Melissa said. The class made cards and wrote letters. Briana's teacher drove to SickKids twice to visit her.
"We just wanted to raise as much money as we could," Briana said.